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Conscience and Courage: How Visionary CEO Henri Termeer Built a Biotech Giant and Pioneered the Rare Disease Industry

Subject Area(s):  Biology in SocietyGeneral Interest TitlesAutobiography/Biography

By John Hawkins

Due October 2019 • 250 pages (approx.), illustrated, index
Hardcover • $29 26.10
ISBN  978-1-621823-70-4
You save: 10%

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  •     Contents    


Henri Termeer was one of the first of a pioneering group of business executives who built a disparate group of fledgling companies into a biotech industry that has driven decades of therapeutic innovation. During a 28-year career at Genzyme, including 26 years as CEO, he created a process of drug development that for the first time was patient-centered. He also helped forge biotech's public policy agenda and inspired a generation of entrepreneurs to take on large and important challenges. An extraordinary number of today's biotech leaders were directly mentored by Termeer. His own leadership was iconoclastic: He broke rules and took risks, setting ambitious goals and finding novel ways to reach them. In doing so he transformed an industry and brought hope to patients with a range of diseases previously deemed too rare to justify the investment needed to support the development of specific therapies. In Conscience and Courage, John Hawkins, an insightful analyst of healthcare leaders, reveals the philosophy, principles, methods, and habits of a prominent and successful CEO who defied convention to create an investor-owned global enterprise that put people before profits and improved the lives of thousands of forgotten patients.

Advance praise:

“Without Henri Termeer, patients with rare diseases would have no hope for new medicines. This authoritative book brings home the highs and the lows of Henri's crusade for rare disease patients and families everywhere. For anyone who really wants to know what ‘patient-centric' means, this one's a must-read.”

—John Maraganore, CEO, Alnylam Pharmaceuticals


Foreword by Joshua Boger
Prologue: Patient One
Chapter 1: The Leader Within
Chapter 2: Wings
Chapter 3: A Great Convergence
Chapter 4: Mission: Impossible
Chapter 5: Delivering Hope
Chapter 6: Duty, Honor, Patients
Chapter 7: Into the Lion's Den
Chapter 8: From Brazil to China
Chapter 9: HAT Tips
Chapter 10: The Crisis
Chapter 11: Changing of the Guard
Chapter 12: The Diaspora
Chapter 13: A Citizen in Full
Chapter 14: The Oracle of Marblehead
Epilogue: Forgotten No More